Terms of Reference

1. Summary / Background

Welcome to the STANDING Collaboration project wiki consultation process.

The STANDING Collaboration project wiki consultation process aims to to establish – for the first time in Australia - nationally agreed sets of clinical indicators embodying clinical standards for a range of medical conditions, using a process characterised by three key features:

1. a single open, transparent, and collaborative process, which allows health care professionals (HCPs) to contextualise indicators using their clinical experience, and enabling the source and provenance of clinical indicators to be viewed;

2. in partnership with health consumers; and

3. with a live and online wiki-based platform to facilitate ongoing review and updating. The medical conditions will be finalised as the project progresses but may include one or more of the following Australian National Health Priority Areas, such as: low back pain, asthma, diabetes, osteoarthritis, and stroke.

For the purposes of this project and document, collectively reviewers healthcare practitioners (HCPs) and consumers with self-reported expertise and/or experience with one of the STANDING Collaboration conditions (and comprise Curator Group panel members, Clinical Champions, and wiki registrants); a clinical indicator describes a measurable component of a standard/guideline, with explicit criteria for inclusion, exclusion, time frame and setting; a clinical standard represents agreed processes that should be undertaken, or outcomes that should be achieved for a particular circumstance, symptom, sign or diagnosis; they should be evidence-based, specific, feasible to apply, easy and unambiguous to measure, and produce clinical benefit(s) and/or improve the safety and/or quality of care, at least at the population level; and appropriate care is care in line with evidence-based or consensus- based guidelines.

On this platform, reviewers are invited to participate in a public consultation process; providing feedback and comment on proposed clinical indicators for a range of common medical conditions in the adult population. The proposed clinical indicators which will be posted on the wiki have been developed for individual STANDING Collaboration conditions using a four-stage process:

  1. searches of Australian and international literature to identify and current clinical practice guidelines for each of the STANDING Collaboration conditions;
  2. select, draft and format proposed clinical indicators using recommendations from relevant clinical practice guidelines;
  3. review indicators internally (among Research Group and Curator Group members); and
  4. review indicators externally (receiving feedback from healthcare professionals, consumers and anyone with an interest who registers to the wiki [“Registrants”] which will be reviewed and managed by the Curator group [led by the Clinical Champion with support from the Research group]).

The STANDING Collaboration Research Group encourages reviewers to alert us of any new evidence and comment on the indicator content to help us achieve our objective of developing nationally agreed sets of clinical indicators embodying clinical standards for a range of medical conditions. The STANDING Collaboration Research Group welcomes you, an expert, to join the STANDING Collaboration wiki community as a reviewer; by accessing and using the website or by clicking ‘create account’ when creating a user account on this website, you agree to be bound by, and responsible for complying with these Terms of Reference.

2. About the content we host

Our content is for general information only: and designed to formulate nationally agreed sets of clinical indicators embodying clinical standards for a range of medical conditions. The wiki content is a ‘work in progress’, therefore proposed (i.e. draft) clinical indicators posted on the wiki during the course of the STANDING Collaboration project are not intended to replace current clinical practice guidelines.

External contributions are not endorsed by STANDING Collaboration and do not necessarily represent the views of the STANDING Collaboration project team. Please use proper judgement and common sense when you view externally submitted content.

You may find some material objectionable; you may encounter material that you find offensive, mislabelled or otherwise objectionable. We therefore ask you to use proper judgement and common sense when using our services and welcome productive and evidence-based (where applicable) feedback in accordance with our Terms of Reference.

3. Reviewers

In order to become a reviewer you must be a registered HCP or consumer who has been approved by the STANDING Collaboration Research Group to work on the clinical indicators for one or more of the STANDING Collaboration conditions. In this role, you will review, provide feedback and make comment on the content, structure and format of clinical indicators on this platform.

In doing so, you agree to:

  • provide information required in the account creation sign up form, such as firstname.lastname as username, your name, role, contact details (e.g. email, telephone), affiliation, and any conflict(s) of interest,
  • provide accurate information when creating a user account and profile.

The personal information you provide will not be available to other wiki users and no personally identifying data will be reported or presented. No financial reimbursement will be provided in this project however your participation is greatly appreciated. ‘Clinical Champions’ will be appointed for each condition by the STANDING Collaboration project team, and their role is to ensure all wiki participants have completed their reviews of the clinical indicators, and to provide further advice as needed regarding the final content, structure and format of clinical indicators.

4. Activities that you agree to refrain from

While using the site, you are required to comply with all applicable laws, rules and regulations. In addition, we expect participants to use the STANDING Collaboration wiki site in a responsible and co-operative manner, respect the rights and dignity of others and in accordance with these Terms of Reference. You may not use the wiki for:

  • submitting information on the site that is or may be illegal, false, misleading or deceptive, abusive, harassing, hateful or intimidating, sexually explicit, defamatory, obscene or otherwise objectionable, protected by copyright, trademark, trade secret, right of publicity or other proprietary right without prior consent of the owner, information protected by contractual non-disclosure obligations or invasive of another's right of privacy;
  • submitting information on the site that contains a virus or corrupted data or using any device, software or routine such as viruses, worms, trojan horses, easter eggs, time bombs, spyware or other computer code, file or program that is intended to interfere with or attempts to interfere with the proper functionality of the Website;
  • advertising or promoting any goods and services;
  • registering, or endeavouring to register a username, in an attempt to impersonate another person, or that belongs to another person, or that is offensive or that STANDING Collaboration rejects for any other reason in its absolute discretion.

5. Responsibilities and information security

You are fully responsible for all activities conducted using your username and password, including your interactions with other members, whether within the STANDING Collaboration project or independently, and for any content contributed to the site. You are also responsible to keep your password secure. Please do not disclose it to any third party. If you notice any unauthorised use of your password and account on this website, you agree to notify the STANDING Collaboration Research Group immediately.

6. Content you contribute to any area of the site

We welcome your participation, appreciate your involvement and support. However, for our own protection and the protection of other users, STANDING Collaboration reserves the right to remove any of your content at any time, without notice and any liability to you, and to terminate any accounts containing or contributing content that is violating these terms of use.

You understand and agree that STANDING Collaboration is under no obligation to display, reproduce, or distribute the content that you post. If required by law, we reserve the right to disclose the identity or other information relating to anyone who has registered a user account on this website.

7. Opting out

If at any point you choose to opt out of participating in the STANDING Collaboration project (i.e. as a wiki reviewer or Clinical Champion), all information entered onto the wiki prior to that point will be retained in the online wiki system and is available for use by the STANDING Collaboration project team.

Where we use your personal information to send you information about the STANDING Collaboration project, we will provide you with an opportunity to opt-out of receiving such information. By electing not to opt-out, we will assume we have your implied consent to receive similar information and communications in the future. We will always ensure that our opt-out notices are clear, conspicuous and easy to action.

8. Privacy policy

STANDING Collaboration is committed to protecting your personal information and/or sensitive information, and we will endeavor to handle your personal information in accordance with our Privacy Policy and Australian Privacy Principles. Please review the terms of our privacy policy, so that you are aware on how we collect and use your information. By using the STANDING Collaboration wiki site, you agree to the terms of this privacy policy. You also agree not to disclose any information classed as sensitive information, such as information about your health, political affiliations, sexual preferences, religious beliefs, racial or ethnic origins, on this website.

This Privacy Policy summarises how we handle your personal information. We may revise this Privacy Policy from time to time by updating this page. The revised Privacy Policy will take effect when it is posted on our website.

8.1 What is personal information

Personal information means information or an opinion about an identified individual, or an individual who is reasonably identifiable:

  • whether the information or opinion is true or not; and
  • whether the information or opinion is recorded in a material form or not.

The types of personal information we collect may include your name, date of birth, gender, professional role, contact details, and other information about any affiliations, memberships and/or conflicts of interest that you may have declared.

8.2 What is sensitive information

As part of the STANDING Collaboration project, we may collect other sensitive information, such as: the type of primary health care setting in which you work, membership of professional association(s). We will limit the collection of sensitive information to the minimum amount required to undertake our research.

8.3 How do we collect your information?

We will collect your information directly from the details you enter when registering online. We may also obtain information (e.g. name, professional role, contact details) from third parties such as your professional colleagues and personal contacts who may suggest you as a potential participant in the wiki process for the STANDING Collaboration project. If information about you is provided by a third party and it is unclear that you have disclosed this information to us, we will take reasonable steps to contact you in order to confirm the information.

8.4 Why do we collect your information?

We collect your personal information to communicate with you in relation to the general progress of the study, activities and objectives, and to comply with relevant laws. Specifically for your involvement in STANDING Collaboration, we collect your information to:

  • verify your identity and eligibility to participate (e.g. professional role, conflicts of interest)
  • allow us to contact you if we need to clarify any content that you or others have placed on the wiki
  • invite you to participate in other stages of the STANDING Collaboration project
  • gain your feedback about the STANDING Collaboration and wiki process to evaluate our program.

If we wish to we collect other information for a specific purpose not outlined above, we will provide you with a collection notice which explains the primary purpose and any related secondary purposes for which we are collecting this information.

8.5 What happens if you don't provide all this information?

If you do not provide some or all of the information requested, you may not be able to participate in the STANDING Collaboration project.

8.6 Where is your information stored and who has access?

Only members of the STANDING Collaboration Research Group will have access to your information.

We take all reasonable steps to protect all of the information we hold from misuse, interference and loss, and from unauthorised access, modification or disclosure. Your information will be stored on a password protected electronic database, which is maintained by a third party on a virtual server. We have existing arrangements which require those third parties to maintain the security of the information. We take reasonable steps to protect the privacy and security of that information, but we are not liable for any unauthorised access or use of that information. Your personal information will stay on the database indefinitely until you advise you would like it removed, unless we de-identify it or destroy it earlier in accordance with the NHMRC ethics requirements for this study.

Hard copy information is generally stored in our offices, which are accessed by the STANDING Collaboration Research Group only and kept in a locked filing cabinet and/or on password protected computer files. Any information not actively being used will be destroyed at the end of the study (including the shredding of paper copies).

8.7 Access to your information

We will, upon your request, and subject to applicable privacy laws, provide you with access to your information that is held by us. However, we request that you identify, as clearly as possible, the type(s) of information requested.

Your rights to access information are not absolute and privacy laws dictate that we are not required to grant access in certain circumstances such as where:

  • access would pose a serious threat to the life, safety or health of any individual or to public health or public safety
  • access would have an unreasonable impact on the privacy of other individuals
  • the request is frivolous or vexatious
  • denying access is required or authorised by a law or a court or tribunal order
  • access would be unlawful, or
  • access may prejudice commercial negotiations, legal proceedings, enforcement activities or appropriate action being taken in respect of a suspected unlawful activity or serious misconduct.

If we refuse to grant you access to your personal information, we will provide you with reasons for that decision (unless it is unreasonable to do so) and the avenues available for you to provide feedback about the refusal.

8.8 Updating your information

You may ask us to update, correct or delete the personal information we hold about you at any time. We will take reasonable steps to verify your identity before granting access or making any corrections to or deleting your information. We are ethically obliged and legislated to take reasonable steps to correct information we hold when it is apparent that it is inaccurate, out- of-date, incomplete, irrelevant or misleading for the purpose for which it is held. If you require access to, or wish to update your information, please email the STANDING Collaboration Project Manager, Dr Louise Wiles (Louise.Wiles@unisa.edu.au).

9. Changes to these Terms or the Wiki

STANDING Collaboration may modify these Terms of Reference at any time and without notice. Please review the Terms of Reference periodically so that you are aware of any such modification. Your continued use of STANDING Collaboration services mandates you to accept and abide by any changes. Please send an email to the STANDING Collaboration Project Manager, Dr Louise Wiles (Louise.Wiles@unisa.edu.au) if you have any further questions in regards to these Terms of Reference.

10. Trademark ownership

All STANDING Collaboration trademarks belong to the related NHMRC Program Grant (APP1054146) and University of South Australia, and cannot be used without our permission.

11. Enquiries

Requests and enquiries concerning reproduction and rights should be addressed to:

Professor William Runciman

Chief Investigator

Email: William.Runciman@unisa.edu.au

Telephone: +61 8 830 22447

Dr Louise Wiles

Project Manager

Email: Louise.Wiles@unisa.edu.au

Telephone: +61 8 8302 1210

Patient Safety Group

Centre for Population Health Research

University of South Australia

CWE-53 Level 8 SAHMRI Building

North Terrace, Adelaide


12. References

Wikimedia Foundation Inc. Privacy policy (2012)/en. San Francisco: Wikimedia Foundation Inc. 2012; [Available at: wikimediafoundation.org]

NHMRC Privacy Policy www.nhmrc.gov.au

Wikimedia Foundation Inc. Terms of Use (2012)/en. San Francisco: Wikimedia Foundation Inc. 2012; [Available at: wikimediafoundation.org].